Monday was a Real Bitch.

We spent six hours in our local children’s hospital on Monday for regular check-up appointments. We got less-than-stellar news at the last appointment. Then we got really horrible extended-family news on the way home, although I won’t be sharing that today.

8:15am: Parking is spectacular, as none of the other handicapped vehicles have early appointments . . . apparently.

8:30am: First appointment time with the rehabilitation doc. Sitting in the waiting room – this neuroscience center is our most-visited location of the hospital. We got this.

8:40am: Called back to do all of the weighing and checking with the nurse. This was our first time taking the little man to an appointment in his wheelchair (instead of the stroller), so she weighed it for us to. Once they know how much the empty wheelchair weighs, we can just push him up onto the big scale and do a little subtraction for the final number.

8:45am: In the room. We are clearly the first appointment of the day and I think that means we will be in and out quickly [ha! I’m naïve]. We start planning a visit to a local brunch spot in-between appointments.

8:45am8:55am: The clock is broken.

9:10am: First up, the resident. She is nice and seems to be further along than some people we usually end up with – most of her questions make sense and she isn’t thrown off if we don’t know the answer to something.

9:20-9:45am: Wait. Wait. Wait. Wait.

9:45am: The doctor! The appointment is pretty short, but we expected that. He is pretty much up-to-date on all of his equipment and doesn’t need any therapy changes, so we just get a prescription for new leg braces and discuss raising the dose of his muscle relaxer (that ends up tabled for the moment, as we meet with our neurologist in a couple of weeks).

10:10-10:45am: Ugh, it is later than expected and really hot outside. We decide to brunch in the hospital cafeteria. Eat. Eat. Sit. Eat.

11:00am: We head downstairs to get the little man fitted for his new braces. Last time we made the mistake of having them done through this school. We loved the style of the braces and shoes a whole lot better and it was definitely easier than visiting the hospital, but the braces fell apart too quickly. We won’t make that mistake twice! If you have never been cast for braces, it is a very simple process and only takes about fifteen minutes.

The little man's first AFOs, 2011.
The little man’s first AFOs, 2011.

11:45am: After wandering around for a while, we go ahead and check in at our next appointment with the orthopedic department. The appointment is scheduled for 12:30, but he will need x-rays first, so it doesn’t hurt to arrive early. The hospital is in the middle of a remodel and this is our first time in the new orthopedic waiting room – very nice!

I lost track of the time spent in this waiting room. At some point, we had three x-rays taken. That went well, mainly because the little man doesn’t have to be put in the horrible baby-tube anymore.

A baby in a Pigg-O-Stat - amazingly not screaming like very other child I've seen in one. This baby became a meme, so I don't know where the original came from.
A baby in a Pigg-O-Stat – amazingly not screaming like every other child I’ve seen in one.
This baby became a meme, so I don’t know where it originally came from.

12:45pm: We are called back, finally!. . . . But wait! It is just to see the nurse and sit in a sub-waiting room. BLARGH! I can’t complain too much though, at this point we are only fifteen minutes past appointment time.

1:00pm: Okay, finally in the actual room. Let’s get this show moving.

1:15pm: ::sigh::

1:20pm: The nurse pops in again to do the initial questions. Yay! She says they will be back in a few minutes. She is lying.

1:50pm: I’m losing the will to live.

2:00pm: Doctor! The little man is tired and really isn’t handling being stretched all over the place very well. Unfortunately, the x-ray shows that his left hip has gotten worse despite our work with Botox in the groin and targeted therapy. We will watch it for a few more months, but if it continues down this path (very likely) we will need to discuss surgery to cut and re-position the bone.

2:15pm: After six hours, we leave deflated.

3:00pm: Distressing family news. We all take a nap.

I’d like end on a high note with a funny graphic about having a “case of the Mondays” here, but it is inappropriate. Perhaps I can update with better news before this posts.

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